Recap: I was suffering from random chest pains for several years, started having trouble swallowing food around 23-24 yrs of age, then drastically began losing weight and went in for more tests and an official diagnosis at age 25. If I had to classify my Achalasia, it would be type 3, the most severe. The entire lower portion of my esophagus does not propel food downwards, and the LES was completely shut. I also suffered from painful esophageal spasms daily.
Can I eat anything I want?
Being honest, no. But I can eat most things. Let's say 90%? I should emphasize that there there are various degrees of Achalasia, and mine was the most severe. The lower half of my esophagus does not function in propelling food downwards. So if I swallow a particularly large pill (vitamins are a good example), or try eating a hamburger, or a soft shell taco, etc, I will have some difficulty. It is nowhere near as bad as before, and gulping water helps, but it certainly is not comfortable, and so I find it best to avoid certain types of food. Most of what you can eat this far post surgery will depend on how severe your Achalasia is. I read about plenty of people on the Facebook forums that can eat just as they did before! For me, I still find small frequent meals are best, and I stay away from foods hard to chew/swallow, (i.e. meats, some breads).
Am I still in any pain?
For the most part, no. I have had a few bad days, lets say 1-2 a month, where I will suffer from esophageal spasms. However, the pain is not as intense as before, and I find that it only happens if I push my limits. Meaning that I eat to much, or eat something I shouldn't have. I did for some time have shoulder pain post surgery if I ate too much, see the previous posts for more details.
Weight returned? Energy levels?
I always have had trouble gaining weight (darn metabolism!!). But, I have gained back about 8 lbs since the surgery. As far as my energy level, that has returned in full. I have returned to my normal level of activity, and then some!
For those of you out there still wondering if life will return to normal, the TRUTH is no. And if your Dr. is any good, they will hopefully be honest with you and give you reasonable expectations (as mine did). Achalasia is permanent, but surgery does make it so that you can eat and return to a "normal" lifestyle with few restrictions. This may sound glass half full, but I promise it's not! Every meal to me now is a small victory, and I am proud to show my scars.
Please post questions or comments below, and thank you to all for your continued support!
Thank you for sharing your story! I was recently diagnosed and had surgery very shortly after. I am 2 weeks post and life is grand! Only problem is shoulder pain when I get full. I wish you continued health and recovery. Thank you for helping to raise awareness!
ReplyDeleteThank you for reading! Good luck with the shoulder pain! and the recovery. I can't tell you how fabulous I still find it to eat without complications!!
DeleteHello! I came across your blog while looking for other Achalasia patients that my be having my same symptoms. I was diagnosed in 2003. I had the balloon dilation back then and the Heller Myotomy in 2006 when the sphincter closed back up. I was wondering if you experience extreme bloating and gas? I get so frustrated. I feel bloated about 80% of the time and it's so frustrating!
ReplyDeleteHi Ari! I only had issues with bloating and gas right after surgery. It seemed to subside afterwards (within a few months). Are you still on any medication that could be causing that? Or do you still maintain a very different diet? I can't think of any other reasons. Good Luck!
DeleteI'm not on any medication other than OTC gas relief pills, like Beano :) It seems that it doesn't matter what kind of food I eat. I get that bloated feeling even if I have a light salad. It's weird. I have a check-up with my gastroenterologist today so we'll see. Thank you for your response! Good luck to you as well :)
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