3 tips for those with newly diagnosed Achalasia

After joining a Facebook support group for Achalasia, I have learned a lot about other peoples' experiences. Here are top pieces of advice I would give.


1) Don't wait
Many people are waiting their symptoms out. Dealing with their Achalasia on a day by day basis. While I agree the surgery is not something you should jump right in to, sometimes it is the best alternative. Waiting and continuing to suffer is no good. Also, since the food is actually stuck in the esophagus, continuing to eat with this condition dialates the esophagus further. Wikipedia does not have the best example, http://en.wikipedia.org/wiki/File:Achalasia2010.jpg, but the point is, it is not a pretty picture. The esophagus becomes stretched out. This can create further problems. Meaning the overstretched esophagus will sag. You don't want to have to have your esophagus removed. So please people, common sense. You can live with this condition, but there is a point when you should seek further medical treatment.

2) Partial Wrap
RESEARCH! Not all doctors are familiar with this condition. Yes, a wrap should be performed to prevent heartburn and acid erosion. However, only a partial wrap is needed (Toupet or Dor Fundoplication). The process of Fundoplication was really created for GERD (Gastroesophageal reflux disease) patients. This procedure was added on to Heller Myotomys after it was discovered patients post Heller Myotomy often suffered from heartburn. Even from reading wikipedia, you can see that the complications of a full (Nissen) Fundoplication consist of dysphagia (trouble swallowing). http://en.wikipedia.org/wiki/Nissen_fundoplication
So please be sure to research and discuss with your doctor.

3) Don't waste time with Botox
I keep reading about people trying Botox. That is only a temporary solution. Again, do your research. Botox and dilations are often and only short term solutions.

I hope these tidbits help. Feel free to post any questions you have in the comments.

3 Months Post HM Update

As of April 23rd, I am exactly 3 months post surgery, which was the heller myotomy with a partial (toupet) fundoplication.

Overall, I am feeling great! Especially in comparison to where I was before. I have gained 5lbs, and am no longer on any medication. I have not had any chest pain (esophageal spasms) or heartburn in the past month. Sucess!

I do still have minor issues eating. Mainly that I can not consume large amounts of food in one sitting. But, I can swallow, and eat most anything within reason. Large chunks of meat, or bread (or tortilla etc) that does not break down easy, still give me trouble. It is easy enough to avoid those things though. I still have partial anxiety when it comes to eating in front of other people. I assume this will pass with time.

Thank you for your support! I have over 600 page views. My hope is to continue to update this blog with more info on Achalasia. But as I am now in the recovery stage, the updates will be fewer. Stay tuned!

I have been promising pics, so here they are:

Reader's Digest Article

It always excites me when there is recent information out there about Achalasia. So much of what I find is outdated. Here is a link to a recent article that was in Reader's Digest.

http://www.rd.com/health/conditions/amazing-medical-mysteries-solved/2/

Always nice to know I am not alone in my journey, and that what I went through was/is "normal" for my condition.

Petition

One of my motives behind creating this blog was to create more awareness about Achalasia. It is an embarassing and difficult disease to have to deal with. Running to the bathroom multiple times during a meal, having difficultly eating (which is a public activity), and looking like you ate almost nothing at all, can be humiliating. One of the reasons I was heasitant to talk about it was because I assumed most people would think I just had a eating disorder, rather than a physical ailment.
Please help by signing this petition: http://www.change.org/en-AU/petitions/the-dr-oz-show-please-broadcast-a-segment-on-achalasia-and-other-motility-disorders#share

One of the reasons so little is known about Achalasia is due to lack of research. By creating more awareness, hopefully more will want to help fund research so that one day a cure can be found.

Thanks!

Post Surgery Shoulder Pain

I mentioned this in an earlier post, but as it is bugging me again, I decided it deserved an article of its own.

Shoulder pain is actually very common post laparoscopic surgery. Reason being the CO2 gas used to inflate the abdomen during surgery. By lifting the abdomen away from the internal organs, the surgeon is able to get a better view. This same CO2 gas becomes trapped post surgery. So why shoulder pain? The diaphragm of the shoulder is connected to the abdomen and other organs of the body via the phrenic nerve. The CO2 exerts pressure on this nerve which translates to a sharp pain felt in the shoulder. For me, that means sharp pains in my left shoulder. I had pain the first 2 weeks after surgery and it seemed to dissipate after a nice massage, but now (7 weeks post surgery) the pain has returned. Tylenol does not see to help a lot. Other tips I have found online include: using heating pads, and drinking peppermint tea, ginger ale, or carrot juice to help dissipate the gas. So far the best thing I have found is a nice soak in a hot tub. I will be sure to update this post though if I find another solution! 

source: http://endometriosis.org/resources/articles/post-surgery-ailments/

The Little Things

If this disease has taught me one thing, that is to be thankful for the little things in life.I found a good place to get my lunch at. I tried a "Stawberry Hulk" today, which has a whopping 964 calories in it; just what I need to gain back the 20 lbs I lost!! Also, the slogan is perfect, chewing is over-rated. For those who suffer from Achalasia, we all know blended things are easier to swallow.
http://www.smoothieking.com/smoothies/smoothie-detail.php?id=62

Recovery - Week 4

It is now 4 weeks post surgery, and 3.5 weeks past when I was released from the hospital. I have gained back much of my energy, which is great. Still not gained back any weight, but that is due to my restricted diet more than anything else. Right now I am on soft foods, and what I find is that while I do not have trouble swallowing, my capacity for how much I can consume has greatly diminished. With liquids, I could eat a lot more, with more solid/soft foods, I find I can eat about a half cup; pressing myself beyond that leads to feeling uncomfortably full. But the recommendation is about 6 small meals a day, so that makes sense. I moved up my check-up appointment with the doctor. It was supposed to be at 6 weeks, but as I am feeling pretty good, and getting stir crazy at home, I decided to go in earlier and see what she says.

For those out there going through the same thing, recovery is a slower process than I thought it would be. I am not yet eating normally, but I am eating much better than before. Prior to the surgery, I was unable to even consume most liquids, and could eat only small meals before feeling the need to regurgitate. I have not thrown up at all since the surgery, which is excellent. 
Physically, I feel almost at 100%. However, I still find that I get tired much quicker after doing small things like cleaning the house, or going out shopping. So overall, I still need to take it easy.

The suggested recovery time is 6 weeks. At 6-8 weeks I can start to resume a normal diet, and after 8 weeks I can return to working out/lifting/stretching/ etc. I will check in at that time to let you all know how I am doing. 

Last comment/side note: I find it interesting how much the weather effects me. Michigan is mostly overcast during the winter, and on those days I find I just want to say in bed doing nothing. Today was sunny, and I was motivated to get out of bed earlier, and even grab coffee at a local coffee shop. Just think, if I had decided to recover in a sunnier state, I could have recovered more quickly!